Today I arrived at my mom's room and my brother Christian was there and so was the "patient coordinator" Leila. Leila came to me on the first day and told me that she was worker on her discharge - what? She just got here and had a very big surgery and you are talking about discharge - weird. But I have never been in this situation before and was caught off guard. I have been very happy with my mom's care but the admitting department and the discharge department are another story. I don't really understand the pressure that they put on a family for money and discharge plans. Frustrating. I just want to make sure my mom is where she needs to be before they discharge her.
She is in another room, out of ICU, and she still has the central line IV in her neck - we were told that she would not be moved until it was out because it was dangerous (because of infection)..the doctor was even upset that she still had this line in. She did get her catheter out and today she wanted a frapachino so I brought her one. She drank a bit but otherwise she said that she has very little appetite. But she is drinking lots of water and sprite. I talked to her about trying to eat so that she can get stronger. She sat in a chair today for 2+ hours and is supposed to sit at every meal so hopefully she is getting up even though she doesn't always want to......I think it is sinking in that my mom has a lot of work to do so that she can get to herself and be at home again.
I have redecorated her room with all the pictures and cards that people have sent...the nurses comment on them and how happy they make the room. I am right now on hold to talk with her nurse to check on her...nurse Jeanine said that she had a good day and that Jeanine has been making her move a lot and she ate a little dinner. Sleep well all
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