Saturday.....arrived about 10am to a room full of people and my mom sitting on the side of the bed getting a back massage from Sonia, she had eaten her breakfast (well most of it) this is the first time I had seen her "really" eat since this all began. The nurse told me that my mom had pulled her feeding tube out, she said that she didn't and swore that a doctor had taken it out but I knew that wasn't true...because the doctor had told me that she wanted my mom to have both to get all her blood counts back up to where it should be. She looked really good...bright and clear...better then I remember in a long time.
She was supposed to wear the C-PAP machine for 3 hours last night...she made it only 1 hour. The doctor was very disappointed and had a talk with her about the importance of wearing this. The machine is used to push air into my moms lungs so she can get the bad air out, keeping her O2 and Co2 in check. My mom hates noise when she sleeps, even though during the day her tv is on full blast, she dislikes a ticking clock. So I had the nurse turn it on to see how loud it was...it is just a hummmmmm no big deal - I told her that has survived all the noises of the hospital for 3 weeks now - she should be able to handle this. I also put it on her face and she started to inhale all crazy and exhale....I told her that she just needed to breathe normally and the mask would do the work. I am not sure really gets it....so tonight I called the nurse and explained that I think she is not clear how to use it...he said that he would talk with respiratory therapy and have them go over it again. My brother went there tonight and she was very tired and falling asleep so she kicked him out - he reminded her to wear the thing and she that she was not going to wear it....I sure hope they make her do it and teach her the way.
Shirley was there while I was and the physical therapist came in. My mom seemed a bit confused at that time..asking the therapist if she was on vacation....why was this happening?? when she had been so clear yesterday....she came around after a little while and they took her o2 reading and it was low...as it came up she got a bit clearer. The therapist got her on her feet and she walked a bit without a cane or walker....we could totally see that she was much stronger than she had been since 3/16 so that was good. She sat herself back down very well and controlled. The therapist thought that her left hand should be re-xrayed so that she could possible use it more...my mom has not complained about it hurting and she uses it a lot, so the doctor ordered it.
Tami the discharge coordinator came in to talk to me about where my mom should go after they let her go from Kaiser, maybe tomorrow or Monday. That concerns me as I believe that this did all start before she left last time and I did not want the same thing to happen again. I told Tami that and she called the doctor to come up and talk with us. I am hoping that does not happen until Monday. I will keep you posted. I know that she is not going back to Eskaton at this time but I do believe that what happened at Eskaton can happen anywhere. What I am hoping to keep up the visits so that the staff is aware that we are aware. I really believe that people coming and going from my moms room will help to assure that she will get good care. Also, I learned that I have to be more persistant when I know something is wrong.
Lunch came and she sat right down and started eating, the doctor was in the room at that time but that didn't stop her. She ate more than half, she was able to open the packaging which she hadn't had the strength to do, also able to pick up the cups when they were full which she had not be able to do...good to see. She said that she was full and she knew she wouldn't want dinner. But when I talked to the nurse at 6pm my mom had said that she was waiting for her dinner because she was hungry - good news.
I hope she gets a good night sleep and that they get that C-PAP machine on her and she leaves it on..they are supposed to put it on at 10 so I may call to see if she did it. My guess is that she will fight it and take it off when they leave the room.....
Well Happy Easter to all of you and thank you for all your well wishes. Things continue to look up...let's hope we keep going in the right direction.
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