Well.......you are not going to believe this one...my mom is back at Kaiser in the ICU and she is intubated again. I thought that I would go back to work today....school started at 8am and at 8:40 I received a call from Windsor letting me know that my mom had a grand mal seizure - WHAT???? did she just say....
I was with my mom from 9-3 yesterday and Sonia was there from 5-7 and Christian at 8pm. My mom had had a good day and was sleeping when Christian showed up and we had a friend who was showing up at 9am today to check on how things were going. I called at 7:30am and was told that my mom was walking around all night and the nurse had to stay with her.....I am not sure what that means - how could one person stay just with my mom when one person couldn't even come when they ring the bell? SO I do not believe that someone stayed with her all night. And if she was "walking" around then she didn't have her oxygen on as the tube doesn't reach. I have reached a point where I just don't trust or believe what these people say...they are just covering their ass's. The nurse was so determined to tell me my mom's vitals - at that point I didn't care. They asked for my permission to have her transported to Kaiser for further evaluation I said yes.
On my way out of my classroom I called Windsor again...and asked what had happened...did she fall?? They said no that she had had no falls but as 911 got there she had another grand mal seizure. She had only been there for 20 hours and already back at Kaiser. I feel frustrated with Kaiser as well....why did they send her out if she was still so medically fragile?? Was it because her medi-care only allows 7 days of charges for their patients and my mom was reaching her 7 days?? I mentioned that to the administration dept. and they gave me a phone number I could call if I thought they were discharging my mom too soon.
I arrived at the ER at the same time as the ambulance - I saw them wheel her in. The ER is good about getting the family in as soon as possible so I was led in quickly as the doctors had questions for me. She was laying moving her legs a little and moving her arms...they asked my what I wanted them to do...should they intubate her?? I said yes so they could figure out what was going on BUT I told them that she did want "life support". I have to tell you that I struggled with this so much...as they were not sure if my mom has sustained any kind of brain damage....and they fact that this time she was on "full" support from the ventilator (before she was the one initiating the breath) - it was now about 11 am and I was keeping it all together until the reality of all things hit me....the nurse in the ER told me that she would have done the same thing (put the tube in) - I just hoped that it was for all the right reasons. Shirley got there shortly there after (she has such a calming, spiritual presence) and I was very relieved to have her with me - thank you Shirley.
They moved my mom up to ICU for the 3rd time in 3.5 weeks......still the vent was on full support and they were waiting for more tests. The plan was to get a MRI of her brain to see if she had a tumor, clot or had had a stroke....it all came back negative. So why did she have the seizure?? The neurologist came in a did a few tests on her...one of which was her reflexes - he said they were good, her eyes were reactive. Now they were waiting for her to wake up more so they could do more tests to check her. Before I left this evening she was a little awake....we tried to get her to follow commands and sometimes she did....the nurse said that we needed to let her wake up more....I asked my mom if she was cold and she nodded so I asked for some warm blankets and she went deeper asleep. Now they are waiting to try and wean her off the tube again possibly tonight....I talked to Sadie about waiting until tomorrow as today had been quite a day..but they really want them off the tube asap. I will call in a while to see how she is.
I really need to thank a group a people who made it possible for me to stay as long as I needed too....Elizabeth, Susan, Amy and Sandy, Leif, Sonia, Angela and Erika....you all rock...it takes a village.
Thank you for all your powerful prayers....my mom is being watched well.
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