Sunday, April 22, 2012

day 38

Today was a visiting extravaganza my mom had Shirley, Brenda, Jan, Krystyna, me, Matthew, Sonia and their twins, Alina, Christian and Sonia.  I know that when I left at 2:30 my mom was tired and had not yet had a nap and it seems she didn't get a nap until it was bedtime....good maybe she will sleep well tonight... sleep well.  Thank you all for the visit....as the physical therapist said - visits are the best therapy

Today my mom asked me a lot about what has happened to her.  She wanted to know what the doctors all said about her and her prognosis.  She seemed pretty clear but admitted that she feels a bit cloudy sometimes.  She is surprised that she has been through all these different huge events.  I see some frustration in her right now...she is a bit "pissed" (as she put it) about understanding WHY she has to wear this machine (Bi-PAP) because she really hates it.  I keep reminding her that she will die without it and she said "I don't understand how this happened", why she has to wear it.  I told her that there is a chance that she won't have to use it forever - I kind of think that once she gets going more and sitting more and eating better that some of this will resolve itself.  I agreed with her that she has been through a lot but that she still has to fight to get herself back completely.

I have been concerned about the fact that she may be coming home as early as Tuesday as she is done with her antibiotics and Kaiser told me that she would not qualify for PT according to Medicare.  Today I talked to the manager and he told me that she would have a 48 hour notice of discharge - well that means it won't be on Tuesday.  Tomorrow I will be going to Windsor to talk to the discharge coordinator for Kaiser patients.  He also mentioned that Medicare pays for home care if it is found that she still needs it...YaHoo - I have been totally worrying about what we were going to do...BUT I really won't know until tomorrow.

For me I believe that things happen for different reasons and lessons are learned from these things..... it takes a village - thank you all

I want to thank my angels out there....Shirley, Marilyn, George,  Windtberg's, Virginia (Dona) and Darryl, Stephanie, Elizabeth and her family, Alina and her family, Tammy and her family.  And everyone else who has sent their love and support....you all rock..I am feeling it and passing it on to my mom

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