Today...I returned to work. It was good to get back but I can not help but feel that I would rather be at Windsor watching over things. My mom stays awake more when someone is around otherwise she tends to lay in bed and sleep which is bad for her Co2 retention - vicious cycle.
My mom still complains about the stupid mask and the nurse told me that she pulled it off so much last night that the night nurse had to go in every hour instead of every two hours. Bummer I guess the chat about the importance was not enough. I still worry that she must not totally get it and wondering if it is because she just isn't all there yet OR is because she is stubborn (I am thinking a little of both). So today I went on a hunt for a smaller mask and I found one. I went back to WIndsor to try it on her and "show" her that it is much smaller then the one she has. The man at Atria Medical told me how to see if it was the right size and if it wasn't then a "small" could be ordered. I think she needs the small but I am waiting to talk to the staff in the morning to see if she left it on. PLEASE mom just do this - the alternative is not what you want...I know, you told me.
My mom told me that she was tired....nothing new - she usually gets tired after lunch. She told me that she had "really" worked out and she had been very busy with the therapists. Shirley told me that my mom had walked a long distance with a walker and the therapist, she had also done some stretching. SO I understand that she is tired. They put her on a "normal" diet...she had been having all of her food ground up so she wouldn't choke (a fear the doctors had especially after being intubated her seizures) - because she had been intubated she stands a bigger chance of aspirating. She was happy about the change and said that the food was a little better. I still worry that she doesn't drink very much that is another reason I like being there....I can remind her.
Tomorrow at 2:30 I will be attending a "Care Conference" for my mom. I guess they will be telling me what my mom will need when she goes home. I am still thinking about how it can all work. Will she be able to be alone? Will she need someone with her all the time? I am sure that she will need someone there most of the time for the first couple of weeks to a month. Tonight I talked to Deborah - my friend and fabulous nurse - and she said that she believes too that my mom will be able to be alone at some point but for now it would be very important that she be not alone until she is really steady.
Tomorrow will be very informative. Thanks for visiting my mom...it really means a lot. And thank you all so much for the "cyber" support I really feel it.
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